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If you want to be in the know about what’s going on at our organization, you’ve come to the right place!


COVID-19 Assistance Programs

Many of the charitable organizations you may be familiar also have COVID-19 specific funds.

The updated trial data from BioMarin have been submitted as a late-breaking abstract to the upcoming World Federation of Hemophilia (WFH) Virtual Summit to be held June 14-19, 2020.

We Stand With You

Discrimination is the greatest threat to a community built on belonging and acceptance. We are committed to being part of the solution.

COVID-19 Webinars and Newsletter Update

NHF will continue to provide information and resources to the bleeding disorder community on the COVID-19 pandemic.

Inhibitors: Coping During COVID-19

In this webinar, Drs. Tammuella Singleton and Tyler Buckner explain what you need to know, and what precautions you need to take if you have hemophilia with an inhibitor.

If you’re looking for a way to get in shape and get involved in the community, we’ve got you covered. Here are five reasons to run for a charity this summer.

These continuing education activities are intended for hematologists, pediatricians, and other healthcare professionals who manage patients with hemophilia.

These continuing education activities are intended for hematologists, pediatricians, nurses, nurse practitioners, and other healthcare professionals who treat patients with hemophilia.

Like any other muscle, a brain needs to be exercised, stretched and challenged to stay strong. Check out these cool tricks you can practice to exercise your brain and build mental muscle.

Nationwide Children’s Hospital Looks at Optimal Dosing in the Emergency Department

The authors of this paper assert that an updated treatment model is needed globally for people with hemophilia, one that strives for health equity by aligning with the promising treatment landscape of the 21s century.
Nationwide Children’s Hospital Looks at Optimal Dosing in the Emergency Department

A team of physicians and pharmacists analyzed factor dosing of hemophilia patients at the emergency department of Nationwide Children’s Hospital, targeting out-of-range and optimal dosing data and subsequent educational interventions.

Nationwide Children’s Hospital Looks at Optimal Dosing in the Emergency Department

A team of physicians and pharmacists analyzed factor dosing of hemophilia patients at the emergency department of Nationwide Children’s Hospital, targeting out-of-range and optimal dosing data and subsequent educational interventions.

Statement from Novo Nordisk on Rebinyn and COVID-19

BioMarin is working with health authorities and governmental regulatory agencies globally, to ensure the safety of all those involved in their clinical trial program, including enrolled participants, investigators, and staff.

Caring for animals is an important part of living an altruistic lifestyle. Today we explore how you can live more altruistically with the animals in your day-to-day life.

Health and Wellness Update #9 from Dr. Valentino

Information and techniques you and your family can use to stay healthy during the COVID-19 pandemic.

NHF's Board of Directors Meeting

The National Hemophilia Foundation will be holding our quarterly Board of Directors meeting on Thursday, May 28th at 7:00 PM EDT.

If you try to live altruistically, then combating your own loneliness can play a vital role in how you serve others. Here’s how to fight loneliness while still regarding social distancing.

Researchers for this observational study focused on macroscopic hematuria, hemophilia, and potential links to family history of hypertension. 

 

Letter to the NHF Community

Many questions and concerns exist in our community and NHF is here to help you navigate the complexities of the pandemic.

Ask the Experts: Coping During COVID-19

This webinar covers updates on how the COVID-19 pandemic is affecting the bleeding disorders community and what people with bleeding disorders need to know about the coronavirus.

When things are busy, wellness often takes a backseat to our presumed priorities. Check out a few ways to bring your personal health back to the forefront of your life.

BDC 2020 Updates and Transition to Virtual

Important updates regarding NHF's 72nd Bleeding Disorders Conference.

Health and Wellness Update #7 from Dr. Valentino

Information and techniques you and your family can use to stay healthy during the COVID-19 pandemic.

NHF and HFA Hold Safety Summity

The executive summary of the NHF/HFA Safety Summit is available for public commentary.

Playing It Safe: Coping During COVID-19

Many of us are looking for new ways to stay active during the COVID-19 pandemic, but it’s important to find an activity that works for you and your bleeding disorder.

Staying Active: Coping During COVID-19

Experts gathered to discuss strategies to keep physically active and the importance of physical activity for people with bleeding disorders in this town hall webinar.

NHF Advocacy Efforts Related to COVID-19

NHF has been advocating on many issues that affect the bleeding disorders community during the COVID-19 pandemic.

How Your Plasma Could Lead to a Potential Treatment for COVID-19

When you donate your plasma, you become the essential first step in a journey to develop a potential treatment for COVID-19. Learn how from the CoVIg-19 Plasma Alliance.

Volunteering and serving doesn’t have to be challenging when you use your talents to support others. Identify your talents, ask for support and find an organization where you can use your strengths to give back.

Health and Wellness Update #6 from Dr. Valentino

Information and techniques you and your family can use to stay healthy during the COVID-19 pandemic.

Voluntary Recall Notice for BD PosiFlush™ SF Saline Flush Syringes

BD is conducting a voluntary medical device recall for multiple lots of the BD PosiFlush SF (Sterile Field) Saline Flush Syringe 10mL.

The CDC is interested in hearing from patients with acute or chronic pain, patients’ family members and/or caregivers, and health care providers who care for patients with pain or conditions that can complicate pain management such as opioid use disorder or overdose.  

Register for Staying Active: Coping During COVID-19

Join us on Friday, April 24th for NHF's next townhall webinar: Staying Active: Coping During COVID-19.

Stress & Anxiety: Coping with COVID-19

On April 17th, experts from NHF answered your questions on how best to deal with stress in this townhall webinar: Stress & Anxiety: Coping with COVID-19.

If you want to get involved this International Pay It Forward Day, check out these quarantine-friendly ways to pay it forward.

BioMarin is working with health authorities and governmental regulatory agencies globally, to ensure the safety of all those involved in their clinical trial program, including enrolled participants, investigators, and staff.

Health and Wellness Update #5 from Dr. Valentino

Information and techniques you and your family can use to stay healthy during the COVID-19 pandemic.

Octapharma’s Wilate® Receives Expanded Approval from FDA

Hemlibra® is known to interfere with certain laboratory assays used to measure blood coagulation.

On April 10th, experts discussed what is involved in a telemedicine visit and provided a look at what is needed for a successful telemedicine visit.

These books inspire the altruistic lifestyle and show anyone can make an impact on the world. Let’s explore each of them more in depth.

NHF will update this page as more statements become available.

Industry Forms Alliance to Develop Potential Treatment for Patients with Serious COVID-19 Complicati

Developing such a treatment would necessitate plasma donations from many people who have fully recovered from COVID-19, and whose blood contains antibodies that can fight the coronavirus.

Comment Period for VWD Clinical Practice Guidelines Open

NHF is seeking comments on draft ASH ISTH NHF WHF clinical practice guidelines on VWD Diagnosis & Management.

Poetry is a cultural art form that combines both the beauty of literature and an artistic sense of musicality. Here are a few ways to get involved this National Poetry Month.

APLUS Statement on FDA Policy Changes Related to Blood and Plasma Donation

NHF and HFA are members of the American Plasma Users Coalition.

The FDA approval is for the treatment and control of bleeding episodes occurring in adults and adolescents 12 years of age and older with hemophilia A or B with inhibitors.

What you need to know about access to HTCs

Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration

Having an adequate supply of treatment products at home is critical to achieve safe patient care and continuity of treatment.

Town Hall Webinar - Insurance: Coping During COVID-19

On March 27th, experts from NHF answered your questions regarding changes in insurance in our townhall webinar: Insurance: Coping During COVID-19.

Meditation is powerful. If you’re still unsure whether or not the practice is worth trying, check out these top benefits of meditation and consider how they can help improve your life.

MASAC's latest set of recommendations cover the use and management of emicizumab, the latest products licensed to treat bleeding disorders, integrating the CDC's opioid prescribing guidelines into bleeding disorders care, and bleeding prophylaxis for patients undergoing gastrointestinal endoscopies.