4696 W. Overland Road, Suite 234
Boise, Idaho 83705

Our Focus

The Idaho Chapter of the National Hemophilia Foundation provides education, support, awareness, and advocacy for our bleeding disorder community. We are the leading resource for those affected by bleeding disorders in the state of Idaho. You can count on us to ensure your voice is heard. It’s with your help that we can make a difference. Learn more and get involved.

News Articles

The Children’s National Hospital and Takeda recently announced the creation of a new, first-of-its-kind program to help standardize and streamline the process of diagnosis and care for individuals with rare diseases.

NHF's Wednesday Webinars for March 2021 will feature an array of speakers and topics of interest to both healthcare providers and patients and families with blood disorders alike.

March Webinars
All webinars are from 2:00pm-3:00pm ET.

 

March 3, 2021

Cellular Therapies for Hemophilia 

Speakers: Amy Shapiro, MD, Indiana Hemophilia & Thrombosis Center, Inc. and Deya Corzo, MD, Sigilon Therapeutics

 

The U.S. Food and Drug Administration (FDA) has partially rescinded a pair of supplemental Biologics License Applications (BLAs) the agency had granted, in error, for two recombinant factor IX products, BeneFIX® (Pfizer) and IXINITY (Aptevo). The supplemental BLAs in question were both approved by the FDA in 2020 and represented additional indications that ultimately ran against exclusivity rights of another product.   

Background:

Envisioning a united community that will make a positive difference in the lives of individuals affected by a bleeding disorder.

Education
Advocation
Inclusions
Development

4696 W. Overland Road, Suite 234
Boise, Idaho 83705

© Idaho Chapter of the National Hemophilia Foundation 2021

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