With just a month left of summer, it’s time to take advantage of all it has to offer. Check out these fun ideas to celebrate the end of the sunshine season!

For Immediate Release 
CONTACT:  
Kyla Clark 
National Bleeding Disorders Foundation 
347-920-0047
kclark@hemophilia.org%C2%A0" title="Email for Kyla Clark">kclark@bleeding.org 

NBDF Unveils THRIVE Campaign: Empowering Individuals with Bleeding Disorders through 6 Essential Steps

Pfizer recently provided new clinical trial updates for their investigational therapy marstacimab. The data was presented last month at the 2024 annual meeting of the European Hematology Association (EHA) in Madrid. Marstacimab is a laboratory-engineered monoclonal antibody developed to treat hemophilia A and B patients, with or without inhibitors.

The National Bleeding Disorders Foundation (NBDF) is excited to announce a new accredited educational opportunity for healthcare providers. This live/virtual program will focus on optimizing non-factor replacement therapy for hemophilia patients. 

If you have something or some time to give, consider doing so today. Here’s a list of easy ways you can give something away today.

Farmers markets have so much more to offer than just the sights and smells. The following is a list of just a few reasons you should visit your local farmers market this summer.

On Friday, June 28th, Novo Nordisk sent a letter to NBDF sharing more information about the current product issue related to NovoSeven® RT and Novoeight ®. The letter is in response to questions that NBDF asked Novo to better understand the cause of this product issue, the potential impact on patients in the United States, and how Novo plans to address it.  NBDF appreciates this additional information, and we will continue to work together with our global partners to raise additional questions and concerns as needed.   

Government Relations Update – June 2024

Federal

Planning an Independence Day party shouldn’t have to be stressful. We’ve compiled a list of everything you need—from food to activities—to throw a bash your friends will rave about.

The National Bleeding Disorders Foundation (NBDF) is excited to announce a new accredited educational opportunity for healthcare providers. This live/virtual program will focus on optimizing non-factor replacement therapy for hemophilia patients. 
 

If you’re looking for a way to get outside while also improving your whole self, gardening may be the hobby for you.

It has been several decades since the publishing of large U.S. studies of neurodevelopment and other cognitive functions in children and young adults with hemophilia. Results of this earlier research that evaluated hemophilia and neurocognitive development suggested that the disease was associated with poorer outcomes compared with the general U.S. These lesser outcomes were observed specifically in areas such as academic achievement, attention, behaviors, and emotional and adaptive functioning. 

The National Bleeding Disorders Foundation (NBDF) is pleased to announce a series of educational videos on clinical issues in women, girls, and people with the propensity to menstruate (WGPPM). They were created for physicians, physician assistants, nurse practitioners, and other clinicians who treat patients with bleeding disorders, including von Willebrand disease (VWD), hemophilia A or hemophilia B. We are sharing this information for those individuals who may have missed our earlier announcement.

The National Bleeding Disorders Foundation (NBDF) is pleased to announce the availability of a series of educational videos on the use of novel non-factor therapies. These videos were designed for clinicians who regularly prescribe therapies for people with hemophilia A and B. We are sharing this information for those individuals who may have missed our earlier announcement.

You know volunteering has a positive influence (make friends, build connections, gain experiences, etc.), but did you know that it can actually assist your health?

NBDF has learned about a product issue with NovoSeven^® RT and Novoeight^®. This is not a product recall, instead there is a concern about the manufacturing process. This manufacturing issue has led to a temporary shortage of the NovoSeven^® RT 1 mg and 2 mg vials and some strengths of Novoeight^® at the Novo Nordisk Distribution Center (NNDC).

It’s June and with Summer almost upon us, it’s a time to head outside for more fun in the sun! It’s also a great time to consider a few resources on maintaining healthy joints before engaging in outdoor activities. This edition of HANDI Highlights contains relevant content links about the anatomy and treatment of joint bleeds, safe participation in sports, and important tips on prevention and exercise.

The National Bleeding Disorders Foundation (NBDF) is thrilled to announce the upcoming launch of the revamped Steps for Living website, your ultimate educational resource for living with inheritable blood and bleeding disorders. Whether you're a patient, parent, caregiver, or healthcare provider, this updated site is designed to guide you through every stage of life, helping you and your loved ones live healthier, happier lives.

There are always ways to give back to others around you, even including the presents you buy. Here are some ideas for Father’s Day gifts that give back.

With the help of a bicycle, we can take better care of the environment, our physical bodies and even spend time together. So how can you mark this momentous occasion?

Memorial Day means much more than time off from work and hosting a barbecue, so if you want to get involved this weekend, check out these great ways to give back.

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Results of a new study published in the Journal of Blood Medicine (JBM), indicate that people with hemophilia A (HA) who have been on a prophylactic treatment regimen have a reduced risk for intracranial hemorrhage (ICH). 

Art galleries are a beneficial component of any neighborhood. Check out some of these ways art galleries are important and why you should visit them this summer.

The U.S. Food and Drug Administration (FDA) has approved updated prescribing information for ALTUVIIIO™ (Sanofi) to include the full results of the phase 3 XTEND-Kids clinical trial. 

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May is Mental Health Awareness month and HANDI, in keep with this theme, is excited to focus on resources that support mental well-being. This edition highlights this important topic from a variety of perspectives and through multiple formats including videos, articles, and podcasts.

If you’re new to the tea game, here’s a breakdown of some of the main types of healthy teas and why you should start drinking them right away.

Late in 2023 the U.S. Food and Drug Administration (FDA) approved a pair of new therapies that represented a significant scientific breakthrough in gene therapy to treat patients with sickle cell disease (SCD), a rare condition with historically few viable treatment options. 

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Storytelling is powerful, and it has enormous benefits in store for you and those around you. Today we’re going to talk about how storytelling can impact your life.

The U.S. Food and Drug Administration (FDA) has approved BEQVEZ™ (Pfizer, Inc.), a new hemophilia B gene therapy product. It is designed with bioengineered adeno-associated virus (AAVs) vectors to introduce a working copy of the factor IX gene. The therapy is administered as a one-time intravenous infusion to stimulate the long-term production of clotting factor IX (FIX) and prevent bleeding. This represents the second hemophilia B gene therapy product to be approved in the U.S.

May Day is a time to come together with family and friends and create festive crafts. If you’re looking for a way to get started, check out these 5 cool craft ideas to celebrate.

New documents issued by NBDF’s Medical and Scientific Advisory Council (MASAC) cover a wide range of topics relevant to bleeding disorder patients in the U.S. and abroad. They encompass recommendations for treatment with licensed therapies, chronic pain management and physical therapy, gene therapy terminology, and bleeding disorders diagnosis in women and girls. Also included are two new resolutions challenging international recommendations that could contribute to negative health and quality of life implications for patients. 

Whether it’s a few hours or a long commitment, volunteering not only supports those around you, but positively influences you as well. Here’s six ideas to get started.

On April 2, 2024, 8 News Now covered our Las Vegas Chapter's Winter Wine Walk with Stephanie Dupree.

On April 2, 2024, 8 News Now covered our Las Vegas Chapter's Winter Wine Walk with Stephanie Dupree.

A new review published in the European Journal of Haematology describes the challenges inherent in managing both bleeding and excessive clot risk in patients with primary immune thrombocytopenia (ITP). 

A new review published in the European Journal of Haematology describes the challenges inherent in managing both bleeding and excessive clot risk in patients with primary immune thrombocytopenia (ITP). 

For Immediate Release 
CONTACT:  

For Immediate Release 
CONTACT:  

Financing a higher education poses considerable challenges, especially as yearly tuition and other school-related costs continue to rise. For many individuals and families considering a higher education, awareness of any opportunities to defray those costs is critical. In addition, because decisions about school can have both near-term and long-term implications, it is also helpful to understand the many financial variables. 

Financing a higher education poses considerable challenges, especially as yearly tuition and other school-related costs continue to rise. For many individuals and families considering a higher education, awareness of any opportunities to defray those costs is critical. In addition, because decisions about school can have both near-term and long-term implications, it is also helpful to understand the many financial variables.