On the federal level, NHF’s annual Washington Days provides an opportunity for the community to discuss critical issues impacting access to care, learn about advocacy, meet with elected officials, and put a face to bleeding disorders. We continually monitor issues on the federal level and update our advocacy priorities as issues arise, such as ensuring funding for federal hemophilia programs and research. Food and Drug Administration (FDA) related issues include blood and blood product safety and protecting access to affordable, quality care and treatment.
If you are a family, teen, or individual and want to have a chance to share your story, please reach out to the Chapter office to see how you can attend future events. Call 208.344.4476 or email: firstname.lastname@example.org.
This year, NHF Idaho was excited to have 4 families participate in the Virtual Washington Days, where we had the opportunity to speak with our House and Senate Representatives from Idaho.
Thank you Shae family, Michael Krieger, Joshua Schmidt, and Zach Walker for your time and support of the Idaho Chapter as we Advocate for our Bleeding Disorder Community.